Proffesionals for MND

Professionals with an interest in MND are wanted for a study to help develop guidelines on best deliverance of an MDT.

For more information please see this letter:

Dear Colleague,

We are approaching you to seek your support in identifying experts with an interest in Motor Neurone Disease (MND) who may be interested in developing guidelines on how best to deliver multidisciplinary team (MDT) care in the UK to people with MND.  The NICE Guidelines (2016) stated that care for people with MND should be delivered by an MDT with clinic based co-ordinated care. They also indicated that the MDT should include health and social care professionals with expertise in MND.  However these guidelines do not outline the optimal structure and delivery of these MDT clinics. A recently completed literature review has brought together the existing evidence to inform the context and format of these clinics. The findings from this literature review along with this current study aims to develop consensus on best clinical practice in the delivery of MDT care for people with MND in the UK.

This research study is being funded through the Gordon Aickman Fellowship Scheme.  Ethical approval has been obtained by the University of Stirling General University Ethics Panel.  The research team are Dr Jenny Preston MBE (Consultant Occupational Therapist, NHS Ayrshire and Arran), Dr Edward Duncan, Associate Professor of Applied Health Research (Nursing Midwifery and Allied Health Professions Research Unit, University of Stirling) and Dr Karen Berry (Lecturer, Faculty of Health Sciences and Sport, University of Stirling).

We are seeking to identify professionals with expertise in working in MDT for people with MND, people with MND and their family and carers who would be willing to participate in an online  eDelphi study. The study will consist of three online questionnaires delivered over a period of six weeks.   We aim to commence the study on the 17th February 2020.  The eDelphi study will be followed up with a face to face consensus meeting (participation is not mandatory) where we will discuss the eDelphi findings and further develop guideline content.   Detailed information regarding the study can be recived on the link below or by contacting the authors (contact details at bottom)

To get more information on this study and register to receive an invitation to participate please click on the following link:

Kind regards


Dr Jenny Preston MBE, PhD, BSc (Hons), Dip COT, FRCOT
Consultant Occupational Therapist and Clinical Lead Neurological Rehabilitation
Douglas Grant Rehabilitation Centre
Ayrshire Central Hospital
Kilwinning Road
KA12 8SS

Telephone: 01294 323040

Mobile: 07827233518

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